Thursday and Friday Updates...

Hi all. So the last couple days have been the same old... Mya is still eating only 1/2 to 3/4 of her bottles, and is doing so inconsistently. They fed her through her feeding tube and didn't try the bottle for the last few nights and this didn't trigger or help her to feed during the day at all. They decided to go back to feeding her all day and all night with the bottle. Mya's occupational therapist (I've been calling her a physical therapist, but I guess that's wrong) said she was going to talk to her doctor today to try to convince him to change her goal from eating 100% of her feedings to 80% before she'd be on the road home. So hopefully she can work her magic and talk him into that. She's still gaining weight, keeping her temp up, etc. She maybe just doesn't need that entire bottle. Her doctor also increased her bottles to be filled from 45 millileters to 54 millileters. So, it's frustrating because you think jeez she can't even eat the 45 why do you want to give her more. She's probably stuck with a really low metabolism like her mommy:) Anyway, it's getting more and more frustrating every day and my patience with the nurses runs pretty slim sometimes. Some of the stuff they do, or don't do, just seems to be setting me off lately. Mya had yellow gunk in her eye when I got there yesterday and had a really, really red bottom. I called her nurse over to look at her bottom when I was changing her diaper and her nurse goes, "Oh, looks like she's sitting in wet diapers too long. I guess we'll have to change her more often." I was like, "NO SH$@*!" I'm so ready to take that kid home and take care of her myself that I could just SCREAM. Sorry, just had to vent. Grandma Lisa was up to visit yesterday and got to hold her for only the second time in her life:) So that was really nice. I'm getting much better at changing diapers and changing her clothes. I don't shake or sweat as much as I was:) She sure poops a lot! I changer her diapers every time I'm there no matter what because of the red bottom incident. So, I'm getting a lot of practice. I'm sure the nurses are ready to kick my ass out of there sometimes! Anyway- I'll update you again tomorrow. Have a great weekend everybody!