Tuesday Update

Hey All!!! So if you haven't heard, MYA IS HOME!! We kind of kept it a little secret, but we were told by her therapist on Sunday that she thought she could go home as early as Monday. Apparently before I got there on Sunday, Mya's docotor had done his rounds and told her that Mya has been doing fine and he would look at her chart on Monday and probably discharge her. She made that countdown that I talked about in the last update:) So I got to the hospital on Monday morning and we still didn't know for sure, but things got crazy cause the nurses we're preparing us to go home. We had pictures and all kinds of education. Lots of preparation and excitement. Things were just crazy. Mya's doctor did rounds at 10:15am and filled out her discharge papers then! I was so thrilled. I just couldn't belive it. Randy got off work at 4:15 and we picked her up and headed home! It was just surreal and everything happened so quickly!! We've been home all day and things are going great. XOXOXO Naomi, Randy, and Mya.

Mya in her carseat in the NICU, ready to head home. She loves her carseat and falls right asleep in it!

Mya's first time in her crib. We got her home and it was like, okay what should we do with her!? She was sleeping, so we thought, let's just put her in her crib:) She likes it:)

Monday Update

Things are going really, really well!!! Looks like Mya will definitly be home this week. Don't have a lot of time to write today, so will get back to you all soon. But, we're on the road home!!!!!!

Saturday and Sunday Update...

So Saturday was a very, very good day. Mya's doctor agreed to change her feeding goal from 100% to 80%. The order came into affect at 2pm on Saturday. We were there at noon to feed her and she did 80% then and did it again at 3pm and 6pm. My sister-in-law, Amy Miranowski's, sister Heidi (they also happen to be cousins of mine) said she had been praying for Mya and did an adoration for her on Friday and promised us that she would eat this weekend! And she has been! Prayer is an amazing thing and it's what's helping us to get through this. So, keep it up you guys. Randy just called the hospital to check on Mya, it's Sunday morning, because we were dying to know if she'd kept up the 80% all night, because at her 3pm feeding today that would mean she'd done it for 24hours and then she'd be one huge step closer to coming home. Well- just hit a road block at 9pm last night and didn't do much of her bottle at all, maybe 10%- so the countdown clock was reset. She's been eating 80% now since midnight last night- so 24 hours would be midnight tonight! The suspense is killing me and this little girl has no idea how much is riding on her eating that 80% of the bottle!! Once she does it for 24 hours, it's maybe another 24 hours to go through a discharge checklist of stuff and then she'll be HOME!!!!!! This is so HUGE you guys:) I'll keep you all in the loop. Below is pictures of Mya's room(s). All ready for her.

Randy and I just put her crib together this morning. Mya's nook upstairs in our bedroom.

Thursday and Friday Updates...

Hi all. So the last couple days have been the same old... Mya is still eating only 1/2 to 3/4 of her bottles, and is doing so inconsistently. They fed her through her feeding tube and didn't try the bottle for the last few nights and this didn't trigger or help her to feed during the day at all. They decided to go back to feeding her all day and all night with the bottle. Mya's occupational therapist (I've been calling her a physical therapist, but I guess that's wrong) said she was going to talk to her doctor today to try to convince him to change her goal from eating 100% of her feedings to 80% before she'd be on the road home. So hopefully she can work her magic and talk him into that. She's still gaining weight, keeping her temp up, etc. She maybe just doesn't need that entire bottle. Her doctor also increased her bottles to be filled from 45 millileters to 54 millileters. So, it's frustrating because you think jeez she can't even eat the 45 why do you want to give her more. She's probably stuck with a really low metabolism like her mommy:) Anyway, it's getting more and more frustrating every day and my patience with the nurses runs pretty slim sometimes. Some of the stuff they do, or don't do, just seems to be setting me off lately. Mya had yellow gunk in her eye when I got there yesterday and had a really, really red bottom. I called her nurse over to look at her bottom when I was changing her diaper and her nurse goes, "Oh, looks like she's sitting in wet diapers too long. I guess we'll have to change her more often." I was like, "NO SH$@*!" I'm so ready to take that kid home and take care of her myself that I could just SCREAM. Sorry, just had to vent. Grandma Lisa was up to visit yesterday and got to hold her for only the second time in her life:) So that was really nice. I'm getting much better at changing diapers and changing her clothes. I don't shake or sweat as much as I was:) She sure poops a lot! I changer her diapers every time I'm there no matter what because of the red bottom incident. So, I'm getting a lot of practice. I'm sure the nurses are ready to kick my ass out of there sometimes! Anyway- I'll update you again tomorrow. Have a great weekend everybody!

Wednesday Pictures!

Mya with her Auntie Ashley

This is the sleeper mom had a terrible time getting Mya into!

Wednesday Update...

Not a great day today...but not terrible, either. So they fed Mya through her feeding tube all night last night and didn't try the bottle, like they had planned. So, Mya's physical therapist and myself both thought she'd do really well with eating out of a bottle all day today. She should have been fully rested and ready to rock. Well, her nurse said that at her 9am feeding she was really sleepy and only did about 2/3. When I fed her at noon she did about 3/4. And that took some work. She does really well for the first 1/2 of the bottle and then just completely tuckers out and has to be pushed to do any more. Her PT and I only got a little burp out of her while we were feeding her, so when we were done I was just holding her and rocking her and she spit up HUGE all over me! Scared the crap out of me! I had to change all her clothes. It was the first time I had ever done changed her clothes and I was sweating when I was done! I had no idea it would be so hard to change her clothes. I'm really feeling like a NEW mom today. She gets so wiggly when you undress her that it's hard to get her arms and legs in the sleeper. Once you do she just pulls that right back out! I picked her up while I was dressing her and laid her on my shoulder and she felt so, so little! She feels almost weightless! Anywho- lots of action today, just not a lot in the feeding department. I'll keep you updated. Were also really excited that Aunt Amy and Uncle Matt will be coming up to visit us this weekend. Can't wait for them to see her!!

Snug as a Bug in a Rug:)

Tuesday Update...

Still riding that stupid rollercoaster:) Mya has stalled they're telling me. She ate a full bottle, then half a bottle, then a full bottle, then a half a bottle, and so on. She's been doing this since Sunday. So, her doctor was in this morning and ordered the nurses to feed her through her tube all night long and then do the bottle just during the day. It sounds like a step backwards and I told her nurse that...but she assured me they do this to get them to "snap out of it" faster. If she's fully rested she'll be more ready to eat from a bottle all day and this will trigger her to do it all night as well. This does however put a delay on her coming home. Once she eats a full bottle for 24 horus straight her feeding tube will come out and they've now decided that after that they need to moniter her with a machine that reads her breating pattern for 24 hours. Her breathing is really shallow, so they just want to run that "test" to make sure before she goes home. Of course they don't do this breathing testing on Fridays or Saturdays (they have to get a special machine and person to administer the test), so it may be next week before she's able to come home...Arrgghh! If by the grace of God she eats really, really well tomorrow we may be seeing her at home this weekend. I'll keep you posted.

Monday Update...

Hi All! The rollercoaster continues! Today was a good day. I got to the NICU this morning and her nurse grabbed me right away and said, "Mya ate a full bottle for me this morning!" So, she's done that twice at that point. I fed her at noon today and she did it again! So that's three times. Her physical therapist was there with me today at noon to help with the feeding and she really had to work with her to get her to finish the whole bottle, but she did it! At 3pm she ate half a bottle and ate half a bottle again at 6pm. One of the nurses told us that she needs to eat full bottles on her own for atleast 24 hours before she can go home. I told her physical therapist this morning that she's coming home with me on Friday, so she better get her ready:) She said she didn't think that was an unrealistic goal, but we have a lot of work to do to get her home this weekend. She's maintaining her body heat now with just one blanket and with no hat. It's just the feedings that she's being so stubborn about:) Second cousin Erika is coming to visit tomorrow, so we're really excited about that! I can't wait for her to meet everybody! She's so cute you guys! And she's a lot tinier in person than you'd think. She's wearing only preemie sized sleepers . All her newborn stuff looks so huge to me! And I thought that stuff used to look tiny. Her smallest newborn sleeper would be enormous on her. Anyway- I'll update everyone again tomorrow. I also took some pics of her today but forgot the camera in the NICU. I'll post them tomorrow. Signing out...

New pics today...

Daddy feeding Mya her bottle.

Mya is back to her birth weight at 5lbs 11oz!